When a cure for FA becomes available, you can receive an email telling you by simply filling out the form below. Your name and email is kept fully confidential and is never sold. That is my commitment to you.

You are asked for your contact information and about your diagnosis. We want to know how old you are now, and how old you were when diagnosed.

Individuals less than 16 years of age, we request that your parent or guardian provide consent for entrance into the registry. Or have someone register for you.

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Is this for yourself? YES:
First Name
Age at diagnosis
Current age
Jason
18
40
Allison
9
18
smdotm
0
0
David
18
40
Alan
18
61
Robin
15
18
Victoria
16
18
michael
48
48
Fred
12
22
Matthew
17
40
Catherine
30
40
chandu
19
27
missy
15
35
Jalean
32
32
Anne
18
46
CAROLINE
15
27
Brett
10
27
Terri
10
27
Lolita
34
44
Paul
9
34
Tara
15
15
Nadia
15
23
steven
11
13
Barb
21
36
Catherine
19
27
Carli
21
27
Darla
30
34
mansour
5
15
rukmani
21
37
rukmani
21
37
Donna
12
25
WILLIAM
19
24
Alan
26
62
Gillian
15
30
murtuza
14
19
Anastasia
38
50
Dawn
5
5
Darryn
13
37
Jennifer
14
16
Riley
14
16
Adrian
5
5
Stanley
18
42
Shay
9
20
sarabjeet
17
28
andre
10
17
andre
10
17
Bindumadhava
5
44
Rhonda
37
38
mansour
6
16
mansour
6
16
bhesuzys
2
2
scott
48
50
Michael
53
55
Michael Drummond
53
55
Michael Drummond
53
55